Wednesday, October 8, 2008

Remission, Anyone?

Mom and I left on Tuesday afternoon and headed to Tampa for the big 5 months post BMT appt with my doctor at Moffitt Cancer Center. My appt wasn't until Wednesday, but it was at 8am and with Tampa being a 2 hour drive, and me feeling so yucky in the mornings and taking forever to feel normal, we decided to drive over Tues afternoon and spend the night so we'd be there first thing in the morning. Otherwise, we would have had to get up REALLY early to get there by 8:00 am and fight the downtown going to work traffic in Orlando, which could make you commit hari-kari. I had emailed my artist friend Kala, who I met at Moffitt when Kate and I went to "Art Therapy" one day and we just connected and felt "at home" with each other, and I asked if she'd like to meet us for dinner while we were there. She invited us over to her beautiful home to see her art studio, paintings and jewelry and then we went for some great Thai food. We had a wonderful evening catching up and enjoying each other's company. When I figure out how to post links on this thing, I'll post a link to her website so you can see how talented she is! So the next morning Mom and I were at Moffitt bright and early where I first went and gave some blood and then went to the hematology clinic to see my doctor. They called me back and I answered the usual questions and had my vitals taken.......which by the way I weighed 96 lbs! Woo Hoo! It's the bagels and cream cheese kick I'm on I think! Dr. Ben came in and we talked about my labs and he said he was just thrilled at how well I'm doing in such a short time and how well I have responded to the transplant. The original "treatment plan" when I was discharged after the transplant was that I would go back to Moffitt for 3-6-9 and 12 month post BMT visits and at the year visit I would have another bone marrow biopsy. Well, Dr. Ben said that he did not need to see me ANYMORE and that he felt very comfortable leaving me in the care of Dr. Nair and if there were any issues with my health that Dr. Nair would contact him. He said Dr. Nair is a great doctor and that I was in good hands with him. Now THAT, I already knew.....but Dr. Nair and Dr. Ben know each other as Dr. Nair worked at Moffitt for 5 years in the Bone Marrow Program, and when I became his patient, he referred me specifically to Dr. Ben for my transplant as he is considered one of the best MM doctors in the country. Again, divine intervention. The doctor I just happened to choose out of all the oncologists in my insurance book just happens to be a specialist in Multiple Myeloma and had worked in one of the most prestigious cancer hospitals under one of the most prestigious doctors that specializes in my type of cancer! So, my friends, I guess I got "fired"! I told him that and he laughed and he said the less I have to see him the better, which is oh so true. So........no more trekking over to Tampa anymore. AWESOME! And only once a month to Dr. Nair...gee what am I going to do with all this free time now, after being scheduled once a week (or more) for over a year and half? LIVE LIFE! After my visit with Dr. Ben, Mom and I snuck up to the BMT clinic to see the nurses that had taken such wonderful care of me. We just wanted to say hi and show them what the results of all their hard work looked like! I was sooooooo happy to see them and they were soooooooo thrilled to see me. It felt really really good. The positive energy was tremendous! They all hugged me and told me how great I looked and they said I "made their day" coming in to visit. I know when my "old" patients would come back to see me it felt so good to know that they were doing great so I guess seeing me doing so well was gratifying for them. All in all, we had a WONDERFUL trip to Tampa, and at this time I have been declared officially cancer free and in remission. I've posted some photos to me with Kala and Dr. Ben. I am so friggin happy right now :)

3 comments:

Susan said...

Wow ,what great news...I pray you stay in remission for A LONG TIME!!! WAY TO GO GIRL. Isn't that a great feeling...you kicked it in the butt!!!

Lindsay said...

That is soooo awesome mama! I'm so proud of you and HAPPY! I love you!

PS- To put Kala's site on here, highlight then right-click the link, press "copy", then when you write in your blog, right-click, and press "paste". When you post your blog, the link will come up blue for people to click on. Call me if you have issues! :)

Tam said...

FABULOUS!!!!!